Chemo 2 of 6 Today--1/3 DONE!!!

Well, Becky and I went to the Oncology office today for my bloodwork (still looking fine), meeting with my doc, and chemo part 2 of 6.

Finally I had the tech pull blood straight from my port instead of my arm/hand. Yay! No track marks this week!!! The results were fine per the doc, and I got the report for my records.

Meeting with the doc went great. He was very surprised to see that I had so much of my hair left. I have lost about half of my hair on top of my head. Oddly, I have most of my body hair too...hmmm. Well, my head hair is coming out very rapidly...so I don't know how much I will actually end up with, but we shall see.

I asked about the new study about cancer changing receptor status when it spreads to the lymph nodes. I asked specifically if the meds I was receiving would appropriately treat a cancer that had become ER or PR positive in nature. Based on what type of cancer I have, and the meds I am currently taking, we are treating it very aggressively and in a way that would attack any of the types it could morph into. Good news. I might watch this research though, as it intrigues me.

I also asked about exercise...what he would like me to do and if he feels I could go to the gym or not. He said he felt like I should do what feels right for me. He would suggest no heavy cardio work, but that exercise is definitely a good thing and to do it. Walks, light weights, and mild cardio is good.

We are continuing on the diflucan medication as it appeared to ward off the Systemic Yeast Infection that I developed last time. Essentially, I had the yeast infection in my mouth, throat, ears, nose and rectum. That was just so nice. Can we not do that again if possible? I have my script...with plenty of refills, so I can keep that side effect at bay. That side effect may be more related to the steroid decadron...

I mentioned about the lovely bone pain that results from Neulasta shots I get the day after chemo. I know I need them, but those f*#&ers are something else. "Mild" Bone Pain my ass. I did tell the doc that some folks on the internet were trying Claritin to help with the bone pain with some success. I told him I had researched the interactions and found no ill effects...so I had tried it. I told him it worked somewhat...not completely, but seemed to cut down the pain level a bit. He said he would look into it.

I did forget (again) to ask about the BRCA gene mutation test results...or if the test had even been ordered. Oh well, must remember this next time.

Next chemo is moved up to the day before Thanksgiving...and the shot will be on Friday. Works for me...just hoping I am up to do the St.Pete Times Turkey Trot (well, the little fun run version of it, the Gobbler 1 mile) the morning of Thanksgiving. My sis will compete in the 5k and will join me for the Gobbler once I sign up! Cool!

Anyway, back for chemo. They upped some of the pre-treatment medications this time to ensure I did not have a funky reaction like I did last time. Last time I got very hot and faint during the last chemo med administration. They had to give extra steroid via IV Push...that was no fun. But this time, they gave me a larger dose of Decadron (steroid) over a longer period, and they gave me Ativan via IV. Hmmm....that was trippy. Made me loopy and tired very quickly. Funny, my left eye was working okay, but my right eye seemed to be going all sideways to the world. Together, this made for some interesting stereoscopic views of the chemo administration room.

My friend Nancy showed up in the chemo room...I had no idea she was receiving treatment there...she is now doing her ongoing Herceptin treatment. She completed chemo then had a unilateral mastectomy. She will be doing reconstruction about 9 months after her last radiation. We talked for a while about what she had been through during the year...wow! There have certainly been some challenges for a handful of the people I know...for her, I wish continued learning and happier times ahead. I hope the same for myself, actually! It was nice to have her there during a large portion of my chemo today...she is such a good soul!

Anyway, I got my usual Aloxi (anti-nausea), Benadryl, Decadron, Tylenol (oral), Taxotere, Carboplatin and Herceptin. All told, I spent about 5 hours hooked up to meds today. No exciting events like last time...just got a bit nauseous and very slightly dizzy during the last med (Herceptin). Was glad Becky was there for support and to watch over me...I cannot stress the importance of having a good person with you during these treatments. My sister is good for my soul...and I need that during this. Thanks Bec!

Well, we finally got out of the office around 5:30 PM, after picking up my next scheduled appointment listing. Becky drove us home and was able to join her running group over in Tampa. I was able to drive up to the pharmacy and fill the new diflucan script (and grab some of that 75% off Halloween Candy that I really did NOT need). Hmmmm...read a small book on Mickey Mantle while waiting for the med to be filled.

Feeling okay tonight...just a little looped and tired. Took some Zofran to combat the minor nausea I was feeling...ate a decent meal (and too much clearance Halloween Candy to even admit to). Now, I think I will take the other meds as directed, drop some Diflucan and hit the bed a bit earlier than I normally do. This girl is a bit tired tonight.

Next Steps:
Get Neulasta shot tomorrow: ooooh...get ready for that "mild" (bullshit, that is not mild dammit) bone pain...
Have Thyroid Biopsy on November 10th
Next Chemo on November 25th

Need to research more on the reconstruction options...how long after radiation must I wait? Can I get implants after radiation? Some questions have come up during discussions with folks and some of my research.

Need to get script for fake boobies to wear in my bras until I get reconstruction...these cotton padded thingys are just driving me a bit crazy. I was supposed to get the script a couple of weeks ago, I just haven't done it yet.

Well, I am off for now.....
Here is to much health and happiness!
~Tory

a week of mild side effects...thank you anti-fungals

Well, this week started off okay...just some interesting side effects. The "mild bone pain" from the Neulasta shot was delightful. I can't wait to experience that again...I wonder if they will be able to reduce it or something, as that pain was quite interesting. I don't really know how to describe the feeling from that stuff...your bones ache from the inside...I think my marrow was screaming out in some sort of unhappy key. My bloodwork Thursday showed a very high White Blood Cell count...so we'll see how it does over the next couple of weeks...and yes, I guess I have to have WBCs...hmmm.
I bleed very easily right now...scratches, picks, bumps. Lots of fun bruises too. I find that I have to be very careful not to cut myself. I still have a bruise on my inner elbow where Nurse Tech Evilness pulled blood a week and a half ago. I wonder if they can find a good vein in my ass, so I don't have to keep going around looking like a junkie. Hmm.
Starting on Monday, my face broke out...my mouth and nose went completely dry, and my eyes started to get these lovely crusties. Then I started in with some symphonic gas...very pleasant farts, I must say. I wish I could produce those on demand...could end some unfortunate situations more quickly. Must research this. Diarrhea started Monday night...glad it waited until I got home from work. Good stuff. Even better on Tuesday when (while working at home) my body decided that it was gonna let loose right then no matter what. I have to say, my pants did NOT deserve that. And Sarge, I love ya, you are a wonderful dog, but please, if that happens again, I will clean the floor myself. You need not "help."
Truly nothing more disgusting than crapping your own pants.
I called the Doc's office to discuss the gas/bloating before the diarrhea started...they switched me to a bland diet--yum, 36 hours of broth...then Immodium to stop the spraypainting.
So on Wednesday, I realized that I recognized a lot of the symptoms I was having. Lucky me, I had a "Systemic Yeast Infection." Funny, I had it everywhere except where you'd expect. Eyes, nose, mouth, butt? Oh, now that is fun. Apparently, the steroids may have set that off...or my knocked-down immune system.
I had nose bleeds from it on Monday, Tuesday, Wednesday...fun. Now I was really looking like a junkie, crusty face, crusty eyes, arm bruises and all. I remember having Systemic Yeast Infections like 16 years ago...from steroids then...hmmm. Gave me bad gas and diarrhea and all of the other symptoms except nose bleeds...
Saw one of the other Oncologists at the Dr.'s office Thursday...to be sure it was a Yeast Infection...and it was/is. She started me on fluconazole to kill off the infection...and it is working very nicely. Nose feels about 50% better today, mouth is much better (Thrush sucks), eyes are happier, face still has some issues (hey, that is what makeup is for), butt is happier. I like a happy butt. No more diarrhea, gas or bloating. Doc said that they may have to keep me on fluconazole (an anti-fungal) during chemo to ward off these issues. High dose too...200mg. Hell, if it works, I am not going to complain.
Also during the Dr. visit, she reviewed my bloodwork and the ultrasound results for my thyroid. I have a 3 cm node on my thyroid that needs to be biopsied soon. Doc didn't look worried, and just said that they needed to look into it further. I really hope it is nothing...I don't have a whole lot of body parts left for folks to just keep yanking out of me. If they have to take that...I "get" to have another surgery (on my NECK eek)...and then I would have to have synthroid the rest of my life. Sheesh. Let's just hope it is nothing...OK?
Bloodwork good.
More bloodwork on Thursday...then next chemo on Thursday after that (November 5th). No date/time yet for the thyroid biopsy, but will have that very soon.
Went up to the office 3 days this week...yesterday (Friday) was the longest day at the office...and I really felt pretty well. I do get very tired EARLY...like around 8 or 9 PM (especially if I have not had a nap during the day), and I am waking up fairly early too. Sleeping okay, better the past couple of nights...been taking Ativan to help me sleep more consistently...I had been waking up every 1.5 hours or so.
My sister left on Tuesday to go back to Texas, take care of a few things, get her truck and slowly head back this way to stay with me during this. I miss her already and am looking forward to having her back. Cheri went home very early Wednesday AM. I really enjoyed having her here...it is so nice to have a friend like her my life. I hope to be able to go see her and her hubby Kevin while they are still living in Alaska. And maybe they both can make their way out to FL next time!

My hair: my scalp has been feeling weird all week...like a dull aching feeling. So, I got a wild impulse to have my hair chopped short...heck, I figure I could try it for a week or so before it fell out. Not really my style, to be honest...it is "fun," but I really do like having long hair. We shall see. Other body hair is starting to thin out, so I am curious when I get to go "monk!" I will give my sis the honor of shaving my head when it starts to go...I think...;-) I am getting the hats ready!

Off to eat some "real food" and not broth. Thank goodness I can eat again!
~Tory