A strange gift indeed: My life beyond breast cancer...

Saturday, January 30, 2010

LAST CHEMO is DONE!!! WOO HOO!

Well, the day has finally come (and gone). I had my last chemo treatment on Thursday!

I met with the Doc first, and we discussed my schedule for seeing him moving forward (every 3 months); when I will start getting PET Scans (every 6 months); when I will begin getting blood tests for cancer markers (intermittently, about every 3 months); and how I will continue the Herceptin every 3 weeks through September. Bloodwork looked very good (with some lower Red Blood Cell counts--I swear I have been feeling that in my leg muscles, but the other counts were fine to continue with treatment). I also asked him to give me a ballpark estimate on my chances for recurrence...25% chance. Bummer...but let's not go there...75% chance of Cancer-Free for the rest of my life what I am going to focus on.

I started getting my chemo at around 11AM...during the Carboplatin administration I began to have an allergic reaction. We had to stop the Carboplatin (it was so close to being done anyway), because my feet and hands began to itch like mad. The palms of my hands turned bright red!!! Apparently, I was reacting to the Platinum in the med...so they ended up having to give me lots of steroids and extra Benadryl to calm down my reaction. I had moderate itching for about 45 minutes...with mild itchiness for the rest of the night (Benadryl helped). Hell, even when I went in on Friday afternoon for extra fluids I was still somewhat itchy.

Oh well...after 5.5 hours hooked up to the chemo machine, I was finally done. I was so tired and nauseous after this!!! Honestly, I think the Aloxi anti-nausea med made me feel more nauseous. Hmmm... I drove home and decided that I would take it easy for the night.

Friday: I slept in a bit and did some work from home via computer. I felt hot as hell...my chest and face were "beet red" from all of the extra steroids they had to give me. Around 1:30 PM, I went in for my extra fluids and my Neulasta shot. I remembered to take my Claritin earlier in the day; however, I somehow forgot to put the Lidocaine cream on the skin over my chemo port. MUST NOT FORGET THIS!!! I still have Herceptin to get every 3 weeks--and even with the sprays and an "expert nurse" putting the needle into the port, that shit hurts!!!Yeouch!

Anyway, I asked for some extra Benadryl to help with the itching...and I asked for some extra Aloxi to help with nausea. I do think Aloxi is crap. Did not seem to help the nausea AT ALL...in fact, I would say I felt more nauseous after it (although I know this could just be mental).

After leaving the doc's office, I drove home and decided to take the dog up to the Dog Park. We stayed there for about an hour...then he went up and pawed at his leash to go home! Sarge is such a good dog...I am so grateful to have him during this experience. He is a total MESS...although I am not sure if I would handle life well without people and critters with issues surrounding me. :-)

LOTS of heartburn, chemo burps and chemo farts last night. Went to bed around 9:30 PM...slept in until 8 AM or so. Good night's sleep...weird dreams though.

So, just a few days of feeling funky...the bad kind of funky. Then, I will begin My Life 2.0!

Upcoming Appointment:
Meet with the Radiation Oncologist on Tuesday

Need To:
Start making appointments to meet with Reconstruction Surgeons...so I can begin looking forward to my NOOBIES. :-)

Love,
Tory

Wednesday, January 27, 2010

Last chemo is tomorrow!!!

So, the last scheduled chemo treatment is TOMORROW! I am so glad this day is finally (almost) here! I will be going in and meeting with the Doc at 9:45 AM then on to chemo for about 4 hours. I know I will feel yucky for about 5 days...but I am ready for this now. I am so ready for this to be over with!

I am ready for my hair to come back; I am ready for my skin to stop looking so dry and wrinkly; I am ready to stop retaining so much water because of the nasty steroids; I am ready for my face to stop needing so much makeup; I am ready for my throat to stop hurting; I am ready for strange food cravings to end; I am ready to stop taking weird medications to keep from getting opportunistic infections; I am ready to not have to plan my life around when I will feel bad or good; I am just plain ready.

I know that radiation treatment will be a pain in the butt...having to go in and get zapped every day for 5-6 weeks is not what I'd call fun; however, I know that it will be much easier on me and my body than chemo.

I know that I will keep having to go every 3 weeks to get Herceptin through the port in my chest. It will take about 90 minutes each time for it to be administered--and I will do this every 3 weeks until October; however, I know that it will be NOTHING like the mess of poisons I have been receiving.

I know that I will have surgery about 6 months after my last radiation treatment. I still do not know what all this will entail; however, I know that I will be just fine.

I know that Breast Cancer sucks; however, I know it has changed me--and I am grateful for this odd gift (well, the fruits of it--I haven't gone that nutty).

Here's to no more poison...
Here's to lots more living!

Love,
Tory

Friday, January 22, 2010

Less than a week until my last chemo...

Well, less than one week until my last chemo! I've been feeling really well this week--a bit tired, but I have managed to drag myself up to the gym two nights after work!!! I've been really excited about work...love some of the projects I am working on. I've even managed to get the dog up to the dog park most nights this week!

My appointment with the Radiation Oncologist (http://www.tbropa.com/index.html is the website...my doc is Greenberg) is set for February 2nd. I will find out what that treatment will be like--exactly when it will begin, what it entails, etc.

Soon, I would like to also meet with some surgeons to discuss reconstruction options. I've researched this quite a bit; however, I've put this on the backburner recently...

Funny, I've noticed my head hair is GROWING! Not new hair where I am bald, but the little fine hairs I have left are growing. WEIRD! At the same time, the hair on the rest of my body is evacuating--my pubes have seriously gone on vacation. And they have not done so in an orderly fashion.

I have had some moderate nosebleeds this week--mostly earlier in the week (and last weekend). They were heavier than they had been...but manageable. I found that I just had to let it clot...and then not mess with the damn clot. Too bad it is fun to dig out bloody booger clots. Hmmm. I apparenly need a new hobby.

Well, I am elated that my last chemo "treatment" is less than a week away. So glad...ready to be done being poisoned....and hopefully cured!

Bring on the last treatment! Let's get this shit over with!

Monday, January 11, 2010

Chemo Weekend #5...tired, sleep, nauseous, hot flashes, chest pains?

Ok, so I am feeling pretty puny tonight. This round reminds me a lot of round #1 where I had this weird ringing in my ears, hot feelings constantly, kinda outer-worldly "I think someone is poisoning me" feeling...hey, someone is!!! Lord do I feel tired and out of sorts!
I am hot one minute, cold the next...and I have this weird feeling like my skin is too big for my body. Weird? Yes, except that my head skin (stay with me) feels too small for my head. No, I am not stoned...and no, I have not taken extra anti-nausea meds today. FYI: most of the cool anti-nausea meds are Atypical-Anti-Psychotics that have the side effect of making one not feel nauseated. Still wonder who figured out that stuff--and how.
Anyway, started getting these weird pains in my chest last night...on the right side (next to my heart). Last night I shrugged it off and went up to McDonald's to get a BigMac (at 10:30 PM). Hey, nothing like "celebrating" a chest pain by eating a BigMac. God, those are disgusting (-ly AMAZING). Yep, disgusting, amazing...incredibly salty. Yeah, polished it off with an Oreo McFlurry. Like I needed that, but hey--I had a serious craving for a BigMac and a McFlurry. These cravings never occur, so hey, why not indulge? Yes, it was late, and yes I went to sleep shortly thereafter. And YES, I had wicked-cool dreams. Well, nightmares actually. Hmmm...
So, got up this AM and went in to work...after my nose stopped bleeding and the worst of the nausea calmed down a bit. On the way up to the office, I realized I had forgotten to take my Claritin...yes, the bone pain was kicking my ass (pelvis, actually), so I stopped at the store and got the 10mg loratadine tabs...
At the office, I started having the chest pains again. In one spot...on the right side, just to the right of my heart. Damn, trying to calm yourself down can be a difficult task in such situations. The pains were intermittent...jabbing, sharp pains. No real rhythm to them...but hey, I put my tail between my legs and decided to head over to the doc just to be sure. Yep, pet me on the head, I actually went to my doc with chest pains.
Hmmm...saw my doc's assistant Nellie again. She figures I am fine...probably more bone pain from the Neulasta...or a pulled muscle, but she sent me over to St. Joseph's for a chest x-ray just to be sure. No call back tonight from the doc, so I am figuring the x-ray was fine or will not be read until tomorrow. Meh, felt okay after the x-ray, still having these weird intermittent pains in my chest though. Feels kinda like a spasm of sorts.
Anyway, I am really tired. I slept some this afternoon, and I am getting ready to head back to bed again now. Thank goodness I am not having a weird craving for some crap fast food tonight! Soup and toast sated me nicely.
Just 17 days until my last chemo...I want this over with NOW. Soon...soon...I am so tired...mentally and physically. I am ready to be done!!!

Friday, January 8, 2010

Chemo part 5 of 6--Just one more to go!!!

Well, yesterday I had my 5th of 6 chemotherapy sessions over in Tampa. I slept horribly the night before--my nerves were just through the roof. I think I was worried about having the side effects I had from the last chemo. Hmmm...

My appointment was at 9:30AM, and my friend Judith was able to come sit with me during the appointment and treatment. Judith rocks!!! My weight was a bit higher than I had anticipated; however, the stupid steroids are still making me retain so much water in my midsection--I was not too surprised.

The nurse drew blood from my chemo port again...but she had some trouble this morning, and she missed the port at first. That was not pleasant AT ALL. Not recommended. Makes you a wee bit nauseous--dizzy, and yeah, I thought seriously about taking a quick nap! I didn't (thank goodness), and she was able to get the needle in properly on the second attempt. Youch!

Met with the doctor's assistant "Nellie" today. I like her...she does a very thorough physical exam (hands on, asks lots of questions, etc.) We decided to do ANOTHER course of antibiotics because I still am coughing a bit from the cold I got last month (hey, I like to hang on to things sometimes!!!) We also decided that because I had such a rough time with the side effects last time, I would come back on Friday (today) to get some extra fluids and extra anti-nausea meds via IV. I am happy with this.

The chemo administration itself went okay, although I did get a bit nauseous at first (probably mental...) It lasted a bit longer than it had in the past...I was there for about 5 hours...Judith dutifully sat next to me and watched me nap most of the time. It was very nice to have her there...I felt relaxed enough to sleep this time, and last time I did not. Trust me, it is just better to have a buddy with you!!! During the last little while, while I was getting the Herceptin, I felt a bit woosy--but it went away within a minute or two. Again, I felt fine enough to drive after I got up and walked around for a bit. Made it home with no problem!

I did run into my friend Nancy at the office. She is almost done with radiation and is still receiving the Herceptin treatments every 3 weeks (like I will be). Her hair is coming back in very thick! Looks adorable...nice to see her looking smiley and happy.

Last night was just fine...I was very hungry and ate small amounts of food throughout the night. Lots of fluids too! This kinda sucked considering the master bathroom toilet was not functioning...so I had to trek over to the guest bathroom A LOT! Oh well, getting the toilet fixed right now...then I will get ready for round 2 of the doc's visit!

Had a bit of trouble falling asleep last night...but was finally able to. This am I am feeling hot (from the steroids), and my skin gets this lovely shade of bright red from the steroids too. We'll see how the side effects are...they have a tendency to kick in later today...although each time has been slightly different.

Well...thank you RotoRooter man, for fixing my toilet...I hope I do not have to abuse it anytime soon!

More later,
Tory

Tuesday, January 5, 2010

Chemo Girl rocks the gym!

So, I felt very well today and decided to head up to the gym. I had a great workout...30 minutes of cardio and about 45 minutes of weights. I was able to do well tonight--still operating at about 2/3 of where I was at with the weight work (having to do less sets), but am able to get the weight to just about where I was before.

Didn't feel too self-conscious tonight, and I was happy to see there were so many other folks wearing beanies! It was about 44 degrees outside (frigid by Tampa Bay standards!) Nice not to be the only one in a hat!!!